ASA Annual Report 2025 Is Here
July 3, 2026
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Link to the report We’re proud to share the Angelman Syndrome Alliance’s Annual Report 2025 — “Together for Science and Hope.” This year reflected the
Link to the report We’re proud to share the Angelman Syndrome Alliance’s Annual Report 2025 — “Together for Science and Hope.” This year reflected the
The Angelman Syndrome Alliance (ASA) is proud to announce the recipients of its 2026 Scientific Research Grants. This year’s call for proposals attracted exceptionally high-quality
The ASA Members Meeting in Hamburg brought together representatives from across Europe and beyond to reflect on progress and plan ahead. Members confirmed over €270,000
We are excited to announce the publication of the second scientific paper from our ASA-funded research project, now available in Human Cell. In this study,
ANGELMAN SYNDROME PHASE 3 TRIALS — COMMUNITY UPDATE (Webinar recorded: 4 Sep 2025) Video here: https://youtu.be/TenTbLp9pIk WHO HOSTED• FAST• ASA ULTRAGENYX — GTX-102 (antisense oligonucleotide
The ASA year report for 2024 has been published: http://angelmanalliance.org/wp-content/uploads/2025/08/ASA-Year-End-report-2024.pdf
The Angelman Syndrome Alliance (ASA) would like to announce our sixth grant call, to fund research for Angelman syndrome, open to teams both in Europe
Sponsored by ASA & ASF 15 leading researchers from around the world gathered for one dynamic symposium in Lisbon, February 2025. Focused discussions on research
Exciting news! In October 2024, ASA became an official member of EURORDIS-Rare Diseases Europe, the European federation of rare disease patient organisations. EURORDIS has been