ASA Annual Report 2025 Is Here
Link to the report We’re proud to share the Angelman Syndrome Alliance’s Annual Report 2025 — “Together for Science and Hope.” This year reflected the strength of our global community. From a record wave of research proposals for the 2026 ASA Grant, to our members’ meeting in Hamburg, to a gathering of leading researchers in […]
Year End report 2024 published
The ASA year report for 2024 has been published: http://angelmanalliance.org/wp-content/uploads/2025/08/ASA-Year-End-report-2024.pdf
ASA becomes an official member of EURORDIS-Rare Diseases Europe
Exciting news! In October 2024, ASA became an official member of EURORDIS-Rare Diseases Europe, the European federation of rare disease patient organisations. EURORDIS has been the voice of rare disease patients, empowering, advocating for and engaging patients for over 25 years, helping to raise the patient perspective in Europe. This membership can help YOU as […]